My Silenced Marathon… My Life…

Archive for the ‘life’ Category

PLEASE VOTE FOR MY PHOTO ENTRY! (NF)

Posted by: Anne on: April 9, 2009

PLEASE VOTE FOR MY PHOTO ENTRY! DONT WORRY ABOUT THE PREVIOUS ONE, BECAUSE THIS ONE IS DOING BETTER! IT IS ALREADY RANKED NUMBER 19, AFTER 2 DAYS. WITH YOUR HELP AND YOUR FRIENDS AND FAMILY MEMBERS VOTING FOR MY PHOTO ENTRY, IT COULD WIN! IT IS EASY! JUST PRESS THE GREEN BUTTON! THANK YOU [...]

My Sidekick 3 was stolen!

Posted by: Anne on: January 8, 2009

My precious sidekick 3 was stolen last week! I already got a cheap replacement phone for just $20 (i’m not on contract right now, but still have service with t-mobile.), and its “okay” but just slow text messaging (15 button keypad). I am thinking about getting something else in a little while, but havnt decided [...]

Merry Christmas! (late)

Posted by: Anne on: December 26, 2008

… and There would be Peace on Earth.

Blogging…. Numerous times, I have clearly gotten this message from my family… “hearing impairment, of any sort, is not accepted in this house.” Well, why do I feel this way? Read on….
I’m the only one in family with hearing loss. late deafened, but last year I got ABI to help with lipreading [...]

Old radio ad is a new experience

Posted by: Anne on: November 26, 2008

A while after lunch I drove to the park and did short run today. My batteries for new Freedom for my Auditory Brain-stem Implant ABI died while I was running. (this processor is so new that I have only changed the batteries 4 times so far and charge – time is a little different from [...]

I had not talked on the telephone for 3 years!

Posted by: Anne on: November 24, 2008

… I LOVED TALKING ON THE PHONE!!! … I became deaf. I knew I’d probably never talk on telephone again. My audiologist had told me that MOST of the ABI-recipients can’t understand much speech without lipreading. Well, I am the kind of girl that does what MOST people (that I know) think would be impossible …

NYC Marathon (NF Team!) / and running with my new Freedom!

Posted by: Anne on: November 24, 2008

On November 2, 2008 me and about 30 or 40 in that team ran and all completed (with a number of PR times, including mine) the NYC Marathon! I just found out that through this event alone NF Endurance Team raised a lotal (so far) of about $ 68,000 toward a cure for Neurofibromatosis! ThanksĀ to [...]

Freedom!

Posted by: Anne on: November 22, 2008

I know I havn’t written on here in a long time, but now I’m back!
I was working in summer, college, and running cross country, and now I’m in fall break.
On November 2, I ran NYC Marathon with Children’s Tumor Foundation’s NF Endurance Team, and finished in 4:33, which is 27 minutes faster than my [...]

long island kicks ass!

Posted by: Anne on: May 6, 2008

PAIN

Posted by: Anne on: May 6, 2008

Jess is a friend of mine.
I met her last summer.
I watched a video with my friend Krissy.
The video was about Jess.
It was posted on news website and had captions.
-
Krissy and I are both 20; Jess is 22.
There is something else we have in common.
We all have NF2.
We have had similar experiences.
and felt the same PAINs.
-
I [...]